Gerald Hurowitz, M.D.·Published 28 April 2011·11 min read
Key points
Those questions weighed heavily on Lucinda's mind when she first came to talk to us about her daughter, who had developed anorexia nervosa and soon became our patient.
"When Anita first showed signs of anorexia, she'd insist she felt fine," remembers Lucinda.
Actually, I wasn't at all sure what was wrong with her.
That's why I pressed her to see her primary care physician."
Will she get better? How? Those questions weighed heavily on Lucinda's mind when she first came to talk to us about her daughter, who had developed anorexia nervosa and soon became our patient. She described Anita, then 16, as a very good student who worked as hard academically as she did on the swim team and had set her mind on becoming a marine biologist. Six years later, mother and daughter recall the turbulence that dominated their lives during Anita's 10th- and 11th-grade years.
"When Anita first showed signs of anorexia, she'd insist she felt fine," remembers Lucinda. "She'd say, 'How could I have anorexia? I eat.' Or 'So-and-so is skinnier,' or 'I could eat more if I wanted to.' As much as I wanted to believe that she was well, I didn't.
Actually, I wasn't at all sure what was wrong with her. For all I knew, some other illness could have been causing her weight loss.
That's why I pressed her to see her primary care physician."
Lucinda's point is key. When someone experiences unexpected weight loss, she might have an eating disorder or she might have another condition such as diabetes mellitus, thyroid disease, or inflammatory bowel disease. Sometimes an eating disorder can occur along with one of these other illnesses, and thus it is crucial for your child to see her primary care physician, pediatrician, or adolescent medicine specialist for an evaluation.
"After Anita's primary care doctor examined her, he confirmed my worst nightmare," Lucinda continues. "Anita had anorexia nervosa. He explained to both of us that malnutrition can progress to the point of harming every organ of the body, including the heart. He was clearly concerned about her weight loss. Her pulse and blood pressure were on the low side, and he felt this went along with her semistarved condition. The doctor assured us that Anita's blood test results would be available within 48 hours and requested that we return to see him in seven days. Meanwhile, he wanted her to take the week off from swim practice and to start eating breakfast before leaving for school."
"Those two recommendations did not sit well with me," admits Anita. "To my way of thinking, my heart rate was slow not because I was ill, but because I was physically fit. A couple of days after my medical evaluation, Mom called the doctor to check on my blood work and learned that it was all normal. When I heard the news, I said, 'See, Mom? There's nothing wrong with me.'
What I didn't tell her was that I'd gone running in place of swim practice that afternoon and intended to do the same every day for the rest of the week. Something inside kept telling me to exercise harder."
Like Anita, many patients in the early stages of anorexia and bulimia have normal laboratory results, which they perceive as evidence that they don't have an eating disorder. Furthermore, these individuals often feel fine. In fact, a person may report feeling more accomplished or better disciplined as she loses weight. This preliminary sense of well-being is likely to reinforce her resolve to continue her food-related behaviors, particularly if peers or others are complimenting her thinness.
Written and revised by
Gerald Hurowitz, M.D.
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Lucinda says, "When I phoned the doctor about Anita's reaction to her lab report, he explained that it generally takes time for an individual with an eating disorder to admit she has a problem and that he would work with me on keeping her medically safe and on increasing her motivation to get well. By seeing Anita every week, he would monitor her health and weight, and at the same time, try to help her see the need for treatment for her eating disorder."
"I dreaded those weekly appointments," recalls Anita. "Every week Mom and I would fight about whether I was going. I'd say, 'Mom, I feel okay. These appointments are so stupid.' I'd be furious at her for making me go. Each visit started with a weigh-in and a vital sign check followed by a talk with the doctor. He would take my pulse and blood pressure while I was lying down and then ask me to stand up so he could check them again. The weighing sent my thoughts spinning. I was so upset about the number on the scale that when the doctor tried to talk with me, I couldn't concentrate on what he was saying. And I didn't want to."
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Lucinda remembers those quarrels about the appointments all too well. "As hard as I tried to avoid arguing with Anita, I could not let her skip her visits to her doctor," she says. "His diligence in sharing his findings and reasons for recommendations with me-as well as with Anita-helped equip me to reinforce his suggestions at home. Early in his treatment, the doctor observed that Anita often looked chilled in the examining room. 'I'm cold a lot,' she admitted. He gently explained that when the body does not get sufficient nutrients, fuel that would normally heat the skin is used to sustain the heart and other vital organs. In addition, a body that is too low in fat has difficulty retaining heat, thus leaving the person feeling cold. Improving Anita's nutrition would help keep her warm. Aware that she had probably tuned out, I figured that, for the time being, I'd be satisfied if she could begin to absorb the doctor's compassion and understanding. As for the information per se, I'd have it to call on whenever she grew ready to hear it."
"That readiness didn't happen for quite some time," notes Anita. "I came away from the discussion convinced that the doctor was out to make me fat. He told my coach that swim practice was off-limits for a while. He spoke to my school nurse as well. I snuck in some laps one weekend during the pool's family hours; I shivered too much in the water to enjoy myself, but that didn't matter. Neither did my jitters nor the trouble I had falling asleep at night. I'd missed several menstrual periods but was only marginally aware of that; what's more, I didn't care. As my illness progressed, I grew proud that I didn't have periods; losing them felt like a real accomplishment."
Many individuals who have recovered from an eating disorder have told us that their drive to be thin was so overpowering that they'd resort to anything to meet that goal, even if it meant tricking a parent or health professional into thinking they'd gained weight when they really hadn't. One young woman recalled arriving at her first appointment with a paperweight deep within each side pocket of her baggy jeans, only to learn that her physician wanted her weighed in an examining room gown. It is not unusual for a patient to secretly drink large amounts of water prior to a weigh-in so as to tip the scale upward. This is worrisome from a medical standpoint because water overload, combined with a low level of sodium in the individual's blood serum, can place her at risk for seizures. Physicians monitor for water misuse by testing the patient's urine for specific gravity.
Due to the nature of eating disorders, it may sometimes be hard-for you and even for the doctor-to know how your child is doing with her eating behaviors. Moreover, a person struggling with an eating disorder tends to experiment with a variety of behaviors throughout the course of her illness. For instance, someone who deprives herself of food may become so hungry that she eats and then panics that the food she has ingested will result in weight gain; in an attempt to rid herself of unwanted calories, she may induce vomiting. A person with bulimia who is stuck in a vicious binge-purge cycle often retains some of this behavior well into treatment. If her doctor has laboratory evidence (such as abnormal electrolytes and chemistries, especially potassium and bicarbonate) suggesting that she is vomiting, she is likely to retort, "I am not."
Whether or not there's clarity regarding your child's behaviors, the idea is for you to strive to understand why she hides them and to avoid putting on your detective's hat to prove her wrong.
Perhaps she is ashamed of her eating disorder or unable to admit that she has one. It's possible that she's concealing her behaviors because she is worried about the impact on you and is trying to safeguard you from becoming frightened or distressed. Maybe she's dishonest about purging because she fears it means that she's "failing treatment" or that you will view it as such. Instead of turning her possible vomiting into a "gotcha" mission, you are better off keeping the lines of communication between the two of you open. In talking to her primary care doctor or pediatrician, let safety be your guide; if she is medically safe, you may have to tolerate occasional purging episodes.
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"About six weeks after we started seeing the doctor, Anita lost a couple of pounds," recalls Lucinda. "I was a worried wreck. 'I am eating more,' she'd insist. The doctor told me that anorexia may distort an individual's interpretation of what constitutes 'more.'
He also suspected that she was exercising more than he had recommended and that, like many young athletes, she might have the misconception that the less she weighed, the better she'd perform.
In talking to us about sports, he highlighted the role of nutrition in sustaining energy and in keeping the muscles strong. He explained that when the body confronts a fuel shortage, it may burn muscle to meet energy needs. Underfed muscles may get smaller, weaker, and less capable of meeting athletic challenges.
He added that restricting Anita's exercise was not a punishment; its purpose was not to deprive her of sports, but rather to make sure she was well enough to participate."
One reason primary care doctors and pediatricians monitor patients with anorexia and bulimia closely is that acute medical problems stemming from these illnesses can strike suddenly, without warning. Anita's doctor discussed the heart as a muscle that pumps life-sustaining oxygen and nutrients throughout the body.
Just as the muscles of the arms and legs get weaker when undernourished, so can the heart. Gesturing toward a plastic anatomical heart model on his desk, he addressed the topic of pulse. While it is true that a low heart rate can be a part of physical fitness, a rate that is healthy for one person can be less so for another. That's why it is important for a patient with an eating disorder who exercises regularly to talk about her pulse with her primary care doctor; sometimes a cardiologist is involved in this discussion as well.
When a heart beats too slowly or when a potassium level is abnormally low, life-threatening heart rhythms can develop. Levels of potassium and other electrolytes are followed closely in patients with eating disorders. Electrocardiograms (EKGs), which record the rhythm of the heart, may be performed and monitored as well.
Some with eating disorders misuse ipecac and similar medications that induce vomiting. Ingesting large amounts of these substances places individuals at risk for muscle weakness and unpredictable cardiac events.
In addition to the life-threatening aspects of eating disorders, a number of other medical consequences exist. Using imaging techniques, such as magnetic resonance imagery (MRI) and positron emission tomography (PET), scientists have identified abnormalities in brain structure and function in individuals with anorexia.
Some patients demonstrate problems with attention, concentration, and memory, and these often resolve with improved nutrition. Regarding her schoolwork, Anita recalls, "Projects that other kids completed with ease came harder to me when I had anorexia.
I compensated by working lots of extra hours to keep my grades high. But all that studying took a lot out of me and kept me from having fun on weekends."
Many of our patients have reported abdominal discomfort.
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When Anita began to eat more, she was troubled by bloating and constipation, which her doctor attributed to a slowdown in the movement of food through her stomach and intestines as a result of malnutrition. "He felt that with continued healthy eating, these discomforts would go away," says Anita. "My vital signs had improved and were now normal. He told me that if I kept up the good work, I'd be strong enough to participate in a one-day group scuba-diving adventure that I'd found out about. I definitely wanted go on that expedition, but I didn't want to gain any more weight. In fact, I wouldn't have minded losing a few pounds."
Individuals who induce vomiting are subject to inflammation of the lining of the digestive tract and esophagus due to acid that backs up toward the mouth along with stomach contents. As our patient Rose, now 25 and doing well in recovery from anorexia and bulimia, recalls, "My heartburn, my sore throats, and my swollen salivary glands all went away when I cut back on my bingeing and vomiting. My strange taste preferences faded as I gained weight.
My periods had stopped because I was so skinny. About six months after I reached what my treatment team called my 'goal weight,' my menstrual cycles started up again. Unfortunately, there was one problem that didn't go away, and that involved my bones."
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David B. Herzog, M.D., Debra L. Franko, Ph.D., Pat Cable, RN
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David B. Herzog, M.D., is the Harvard Medical School Endowed Professor of psychiatry in the field of eating disorders at Massachusetts General Hospital and the director of the Harris Center at Massachusetts General Hospital. Debra L. Franko, Ph.D., is a professor in the Department of Counseling and Applied Educational Psychology at Northeastern University and the associate director of the Harris Center at Massachusetts General Hospital Pat Cable, RN, is the director of publications at the Harris Center.